April is an interesting time for those of us closely connected to autism. Recognized as Autism Awareness Month, this time of year puts a large aspect of our daily lives in the forefront of mainstream media. Speeches abound, as do news features that tend to speculate wildly about many facets of the disability. Unfortunately, many of these speeches and features are taken as gospel by folks who don't understand the first thing about autism, people who don't take the time to fact check or put things in context. Calls and emails pour in from well-meaning acquaintances who saw a two-and-a-half-minute TV spot and now fancy themselves experts on the subject.
In short, April is hard.
And I'm just gonna go ahead and say the thing we're not supposed to say as parents of children with a disability: I'm tired. When left to my own devices, I begin to question the wisdom of constantly looking for teachable moments and making it my life's mission to correct all of the poorly researched, dime-a-dozen rhetoric people spout off to me every day. Sometimes it seems as though I'm just picking fights with people who don't really give a fig about the nuts and bolts; they just want to parrot their mass media tidbits and pat themselves on the back for being so accepting.
Don't get me wrong: I will continue to advocate for The Princess and others like her; of course I will. I guess this is really just a long-winded way of telling you that I'm not going to be preaching the same canned tidbits you see on your local news spots this April.
I will, however, talk about awareness in bite-sized pieces for the rest of this month. And, if I'm being perfectly honest, probably for as long as I live. Because I'm an autism momma, and that's what we do...whether we mean to or not.
Monday, April 8, 2013
Monday, April 1, 2013
IEP and Rumblings: Part Two
Just a day after that phone call from The Fabulous Mrs. G., The Hubbs and I had a date with The Princess's team at school for her re-evaluation and IEP meeting.
Once again, I was awed by the caliber of human being that makes up our local special education district. These people get it. They really do. They love our kids and see them as people, rather than inconveniences or disabilities.
Her speech therapist was so excited to tell us about her plans that she was literally getting tongue-tied. Her mouth couldn't keep up with her brain and all the things she wanted to communicate to us, and she was unbelievably adorable. The first thing out of her mouth was how much she adores our girl.
The rest of the meeting went just as well. The special ed coordinator from our home district was there, and she assured us that The Princess would not be transferring out of the special education district. The next piece of good news we got was that The Princess will be staying with The Fabulous Mrs. G. for another year. Her school day will lengthen by another hour, since she'll be entering first grade. Overall, the input from the staff was positive. She's been making progress, and we have a plan in place to help her continue to succeed at her goals.
Unfortunately for some of the people in that room, our special education district just had to lay off almost 50% of their staff due to cuts at local school districts. It just breaks my heart. I can't imagine being one of the parents who is standing on the edge of the great unknown right now. At least we know that the people working with The Princess have her back, and that they really, truly understand her.
I'm choosing to look on the bright side. Though we don't know yet where The Princess will be going to school next year, we do know with whom. Things are going to change for sure, but at least we have the security of knowing The Fabulous Mrs. G. will be there to guide our little girl through it.
Once again, I was awed by the caliber of human being that makes up our local special education district. These people get it. They really do. They love our kids and see them as people, rather than inconveniences or disabilities.
Her speech therapist was so excited to tell us about her plans that she was literally getting tongue-tied. Her mouth couldn't keep up with her brain and all the things she wanted to communicate to us, and she was unbelievably adorable. The first thing out of her mouth was how much she adores our girl.
The rest of the meeting went just as well. The special ed coordinator from our home district was there, and she assured us that The Princess would not be transferring out of the special education district. The next piece of good news we got was that The Princess will be staying with The Fabulous Mrs. G. for another year. Her school day will lengthen by another hour, since she'll be entering first grade. Overall, the input from the staff was positive. She's been making progress, and we have a plan in place to help her continue to succeed at her goals.
Unfortunately for some of the people in that room, our special education district just had to lay off almost 50% of their staff due to cuts at local school districts. It just breaks my heart. I can't imagine being one of the parents who is standing on the edge of the great unknown right now. At least we know that the people working with The Princess have her back, and that they really, truly understand her.
I'm choosing to look on the bright side. Though we don't know yet where The Princess will be going to school next year, we do know with whom. Things are going to change for sure, but at least we have the security of knowing The Fabulous Mrs. G. will be there to guide our little girl through it.
Labels:
autism,
district,
iep,
one mom's journey,
re-evaluation,
school,
special education,
special needs,
the hubbs,
the princess
Monday, March 25, 2013
Rumblings: Part One
The past couple of months have been interesting. With The Princess's annual IEP coming up, along with the looming 3-year reassessment, there's been a lot to do.
While we've been preparing for these meetings, we've heard some rumblings concerning the programs available to special needs kiddos in our area. Nothing has been released officially, but we keep hearing rumors that a town in our county has decided to pull all of their autistic children out of the special education district programs in favor of fledgling programs that will be initiated by the local school district come this fall. To save money. They never even ran this past the parents.
Needless to say, we hoped these were just rumors.
A day or two after we filled out the grueling 3-year re-evaluation (a twenty-two page packet of depressing questions and observations, a truly nasty document that requires copious amounts of chocolate to deal with), The Hubbs received a phone call.
The Fabulous Mrs. G. was calling to talk about what's going to happen next year. Evidently, the rumors are true. All of the kids in a district two towns over have been pulled from the special education district, and their home district is going to start their own autism program. This is in progress all around the county. The parents have no choice. Mrs. G. wanted to let us know, because our little town apparently had yet to make a decision one way or the other.
I immediately started researching who I should talk to, which offices to call, which feathers to ruffle, in order to make sure our girl continues to get the level of care and service she has become accustomed to during her three years with The Fabulous Mrs. G., who - by the way - has been doing this for twenty-nine years. I can't imagine changing everything up on her now, not after the amazing progress she's made with this team.
Once I finished breathing in and out slowly into a paper sack, I started to form a plan of action. I'd start with the special ed coordinator at The Princess's home district, as well as the superintendent. I was armed with all of the contact information for the members of our county board who represent our district. I just couldn't trust my voice not to break or my tears not to flow.
I had to do this right. And that meant it would have to wait.
While we've been preparing for these meetings, we've heard some rumblings concerning the programs available to special needs kiddos in our area. Nothing has been released officially, but we keep hearing rumors that a town in our county has decided to pull all of their autistic children out of the special education district programs in favor of fledgling programs that will be initiated by the local school district come this fall. To save money. They never even ran this past the parents.
Needless to say, we hoped these were just rumors.
A day or two after we filled out the grueling 3-year re-evaluation (a twenty-two page packet of depressing questions and observations, a truly nasty document that requires copious amounts of chocolate to deal with), The Hubbs received a phone call.
The Fabulous Mrs. G. was calling to talk about what's going to happen next year. Evidently, the rumors are true. All of the kids in a district two towns over have been pulled from the special education district, and their home district is going to start their own autism program. This is in progress all around the county. The parents have no choice. Mrs. G. wanted to let us know, because our little town apparently had yet to make a decision one way or the other.
I immediately started researching who I should talk to, which offices to call, which feathers to ruffle, in order to make sure our girl continues to get the level of care and service she has become accustomed to during her three years with The Fabulous Mrs. G., who - by the way - has been doing this for twenty-nine years. I can't imagine changing everything up on her now, not after the amazing progress she's made with this team.
Once I finished breathing in and out slowly into a paper sack, I started to form a plan of action. I'd start with the special ed coordinator at The Princess's home district, as well as the superintendent. I was armed with all of the contact information for the members of our county board who represent our district. I just couldn't trust my voice not to break or my tears not to flow.
I had to do this right. And that meant it would have to wait.
Labels:
action,
autism,
district,
education,
one mom's journey,
rumors,
school,
special education,
the hubbs,
the princess
Monday, March 18, 2013
Ever Wonder...
...what happens when you whip your head to the side while someone is trimming your hair?
That's right: you get a brand-new short haircut. That's really cute. But totally not what your momma intended when she set out to give you a trim.
But it's okay, because you're flippin' adorable.
That's right: you get a brand-new short haircut. That's really cute. But totally not what your momma intended when she set out to give you a trim.
But it's okay, because you're flippin' adorable.
Labels:
haircut,
one mom's journey,
the princess
Monday, March 11, 2013
Sorry
I'm sitting at the dinner table, minding my own business, when - zing, SPLAT! - I find myself the victim of airborne marinara sauce.
Turning to my left, I see a little girl who is just bursting at the seams with the effort she's putting forth. Tears have popped into her eyes, and she's trying with all her might not to laugh.
But I'm no fool. Her empty spoon is held high. Think catapult.
Me: Princess, we NEVER throw food at the table. That is NOT funny.
The Princess: Heh.
Me: Oh, no. This is not funny. It makes me very sad that you would throw your food at me. Please say you're sorry. (Showing her the sign for "sorry")
The Princess vehemently shakes her head from side to side, cackling.
The Hubbs is turning purple.
Me: Excuse me, Princess! We never act like that. You hurt my feelings. Please say you're sorry. (Showing the sign for "sorry" again)
The Princess points straight at me and grins, on the verge of giggles.
Me: ... (Shooting daggers out of my eyes)
The Hubbs is doubled over in his seat. I think he may need to start breathing into a paper bag soon.
The Princess carefully forms a fist with her left hand, placing it against her chest and moving it in a small circle, perfectly displaying the sign for "sorry" while pointing her spoon at my face and belly laughing.
What do I choose to take from this? The fact that she said she was sorry. So she didn't mean it. What five-year-old does, really?
Turning to my left, I see a little girl who is just bursting at the seams with the effort she's putting forth. Tears have popped into her eyes, and she's trying with all her might not to laugh.
But I'm no fool. Her empty spoon is held high. Think catapult.
Me: Princess, we NEVER throw food at the table. That is NOT funny.
The Princess: Heh.
Me: Oh, no. This is not funny. It makes me very sad that you would throw your food at me. Please say you're sorry. (Showing her the sign for "sorry")
The Princess vehemently shakes her head from side to side, cackling.
The Hubbs is turning purple.
Me: Excuse me, Princess! We never act like that. You hurt my feelings. Please say you're sorry. (Showing the sign for "sorry" again)
The Princess points straight at me and grins, on the verge of giggles.
Me: ... (Shooting daggers out of my eyes)
The Hubbs is doubled over in his seat. I think he may need to start breathing into a paper bag soon.
The Princess carefully forms a fist with her left hand, placing it against her chest and moving it in a small circle, perfectly displaying the sign for "sorry" while pointing her spoon at my face and belly laughing.
What do I choose to take from this? The fact that she said she was sorry. So she didn't mean it. What five-year-old does, really?
Labels:
apology,
ASL,
autism,
development,
dinner,
mimic,
one mom's journey,
sign language,
sorry,
the hubbs,
the princess
Monday, March 4, 2013
Look, Mom...I'm People!
In case you don't know us in real life, The Princess is actually our third child. Our kids are each a year apart, all born in the spring.
Our oldest, Bubbles, tends to have skin issues from time to time. These issues range in type, but the one thing they all have in common is her ability to obsess about them and make them worse. Only one thing seems to cure her obsession: shirts.
Stick this kid in a tee shirt, and she's as happy as a pig in...ahem. Well, I'm sure you get the idea.
She bounds around the house with her head held high, grinning and wagging her whole body. Sometimes, I guess it's the little things that make all the difference in a girl's day.
Our oldest, Bubbles, tends to have skin issues from time to time. These issues range in type, but the one thing they all have in common is her ability to obsess about them and make them worse. Only one thing seems to cure her obsession: shirts.
Stick this kid in a tee shirt, and she's as happy as a pig in...ahem. Well, I'm sure you get the idea.
She bounds around the house with her head held high, grinning and wagging her whole body. Sometimes, I guess it's the little things that make all the difference in a girl's day.
Labels:
american bulldog,
bubbles,
one mom's journey,
shirt
Monday, February 25, 2013
Gap
Not to beat a dead horse or anything, but there is nothing cuter in my book than the gap between her teeth.
Labels:
autism,
gap,
lost tooth,
milestone,
one mom's journey,
the princess
Monday, February 18, 2013
Loose
For nearly the last week, The Princess has had a new pastime: playing with her loose tooth.
It weebles.
It wobbles.
It wiggles.
And, apparently, it falls out. Sometime during my flight to San Francisco for work, my girl lost her first tooth. I found out when I called to check in with The Hubbs as my plane was taxiing to the gate.
You know what kills me? I missed it. I know there's no way to regulate these things, but there's a small part of me that really wishes it would have happened just a few hours earlier so I'd have been there.
But maybe if I'm really, super sweet on the phone, The Hubbs will send me a picture. Ahem, cough, cough. Hint, hint. NUDGE.
I can't believe how big she's getting. Our little girl isn't so little anymore. And when I talked to her from the hotel, she busted out laughing when I mentioned her tooth. I don't know which is bigger: the loss of the tooth or the fact that she actually listened to me on the phone.
It weebles.
It wobbles.
It wiggles.
And, apparently, it falls out. Sometime during my flight to San Francisco for work, my girl lost her first tooth. I found out when I called to check in with The Hubbs as my plane was taxiing to the gate.
You know what kills me? I missed it. I know there's no way to regulate these things, but there's a small part of me that really wishes it would have happened just a few hours earlier so I'd have been there.
But maybe if I'm really, super sweet on the phone, The Hubbs will send me a picture. Ahem, cough, cough. Hint, hint. NUDGE.
I can't believe how big she's getting. Our little girl isn't so little anymore. And when I talked to her from the hotel, she busted out laughing when I mentioned her tooth. I don't know which is bigger: the loss of the tooth or the fact that she actually listened to me on the phone.
Labels:
autism,
development,
loose tooth,
one mom's journey,
the hubbs,
the princess,
tooth
Monday, February 11, 2013
Down For the Count
One of my New Year's resolutions for 2013 is to post here once a week. I came up with a schedule I could work with, and I've been doing really well so far.
Until this weekend. On Saturday, The Princess came down with the flu. It hit The Hubbs and me last night. At this point, all three of us are down for the count.
So, until we're back on our feet, this will have to do. Talk to you soon, friends.
Until this weekend. On Saturday, The Princess came down with the flu. It hit The Hubbs and me last night. At this point, all three of us are down for the count.
So, until we're back on our feet, this will have to do. Talk to you soon, friends.
Labels:
flu,
one mom's journey,
the hubbs,
the princess
Monday, February 4, 2013
Even Teddy Bears Deserve a Break
Remember Butterscotch?
He quickly became a member of The Princess's elite royal guard, and the two of them found fast friends in each other. Though he's big, Butterscotch is really a - forgive the pun - total teddy bear. He loves his girl, and he puts all of his energy into keeping her happy, as any good bear would.
Even teddy bears deserve a break. I'd go so far as to say that teddy bears sometimes need more of a break than the rest of us. Have you ever been dragged across the house by a five-year-old with a death grip on your ear?
Butterscotch learned very quickly that the time to get his R&R in is while The Princess is at school. Once she barges through that door, all bets are off.
Most days, we see him sipping coffee or hoarding honey. Sometimes, if we're very sneaky, we might even catch him reading.
Raising a five-year-old is hard work, you know. If you ask me, this bear has earned some time to kick back and enjoy a good book.
He quickly became a member of The Princess's elite royal guard, and the two of them found fast friends in each other. Though he's big, Butterscotch is really a - forgive the pun - total teddy bear. He loves his girl, and he puts all of his energy into keeping her happy, as any good bear would.
Even teddy bears deserve a break. I'd go so far as to say that teddy bears sometimes need more of a break than the rest of us. Have you ever been dragged across the house by a five-year-old with a death grip on your ear?
Butterscotch learned very quickly that the time to get his R&R in is while The Princess is at school. Once she barges through that door, all bets are off.
Most days, we see him sipping coffee or hoarding honey. Sometimes, if we're very sneaky, we might even catch him reading.
Raising a five-year-old is hard work, you know. If you ask me, this bear has earned some time to kick back and enjoy a good book.
Labels:
butterscotch,
one mom's journey,
teddy bear,
the princess
Monday, January 28, 2013
These Boots Are Made For Clompin'
Somebody stole her momma's boots, and she is currently clompin' around the house.
Mere minutes after snapping this picture, The Princess and I were face-to-face in the middle of a monstrous community giggle fit. She snorted like a pig and then found that so hilarious that she flailed around like only she can do...and whacked my nose so hard I saw nothing but a flash of white for a moment. Now it's numb. Here's hopin' I don't end up at the office with two black eyes tomorrow.
But, ya know, even if I do, it'll totally be worth it.
I am simply amazed every single day by this little girl. It's all of the little things, really, that are just so BIG in our house. Even a year ago, I don't know if I would have been able to take a picture of my girl looking at the camera. At that time, she wasn't so engaged. If I laughed, she usually didn't. Her idea of playing pretty much consisted of sitting alone in her room and stimming on one object past the point of obsession, screaming bloody murder when she finally realized that she simply couldn't stop what she was doing, that the activity had taken over and she didn't know how to move onto something else. Interactions by that point largely consisted of prying the object out of her fingers while she screamed and cried and ran away.
So you see why this would be worth two black eyes, right?
Yeah. Me, too.
Labels:
autism,
boots,
development,
one mom's journey,
the princess
Monday, January 21, 2013
Cousin E's Birthday Party
Where does the time go?
I can hardly believe it's been a year since our beautiful goddaughter, E, was born. Okay, well, it'll be a year tomorrow, but her party was this Saturday.
This generation of girls, with The Princess being the oldest and E the youngest (so far), well...they amaze me. I love seeing how they interact with each other and assert their independence in their own little ways. It seems like their personalities are ingrained almost from day one, and it really is a joy to sit back and observe them.
The more of these parties we go to, the more comfortable The Princess is with the huge rowdy group of folks we're lucky to call our family.
And, though I don't like to dwell on the negative, I've kind of felt as though I've been missing out the last few years. The last big party we had for The Princess was at her own first birthday, for what should be fairly obvious reasons by this point. I freely admit to my crying jag last year when I realized I wouldn't be able to throw a big party for her fifth birthday. Five is one of the big milestone years in my family, and it broke my heart that I couldn't have the party, but it was more important to me for her to be comfortable.
Now, seeing how well she is interacting with everyone and self-regulating when she needs to, I'm starting to think there may be hope yet.
That's right. We're going to have a birthday party this year. Lord help us. We'll probably ask everyone to sing in whispers, and she likely won't last more than a minute or two opening gifts, but we're gonna try it.
Here's hopin' there are half as many smiles that day as we saw this weekend.
I can hardly believe it's been a year since our beautiful goddaughter, E, was born. Okay, well, it'll be a year tomorrow, but her party was this Saturday.
This generation of girls, with The Princess being the oldest and E the youngest (so far), well...they amaze me. I love seeing how they interact with each other and assert their independence in their own little ways. It seems like their personalities are ingrained almost from day one, and it really is a joy to sit back and observe them.
| E, the Birthday Girl, showin' off her bunny ears. |
| K helping E out with the cake...E really wanted to see what she was doing. |
| The Princess and Nana |
The more of these parties we go to, the more comfortable The Princess is with the huge rowdy group of folks we're lucky to call our family.
And, though I don't like to dwell on the negative, I've kind of felt as though I've been missing out the last few years. The last big party we had for The Princess was at her own first birthday, for what should be fairly obvious reasons by this point. I freely admit to my crying jag last year when I realized I wouldn't be able to throw a big party for her fifth birthday. Five is one of the big milestone years in my family, and it broke my heart that I couldn't have the party, but it was more important to me for her to be comfortable.
Now, seeing how well she is interacting with everyone and self-regulating when she needs to, I'm starting to think there may be hope yet.
That's right. We're going to have a birthday party this year. Lord help us. We'll probably ask everyone to sing in whispers, and she likely won't last more than a minute or two opening gifts, but we're gonna try it.
Here's hopin' there are half as many smiles that day as we saw this weekend.
Labels:
autism,
birthday,
crowd,
development,
family,
one mom's journey,
party,
progress,
the princess
Monday, January 14, 2013
Keeping a Straight Face
Okay, you're all aware of The Princess's shiny new ability to mimic. She's parroting actions, gestures, facial expressions, even some sounds. It's amazing.
But.
How the hell am I supposed to keep a straight face when I'm trying to scold her and she mirrors my stance - hands on hips, stern eyebrows, the whole nine yards?
The answer: I'm not. It's cool. It's new. It's fun. And there's no way I'm keepin' a straight face. At least not yet.
My girl, who will be turning six in three months, is finally starting to play some of the games we've been trying for since she was a baby. I think I'll just soak it all up and enjoy every moment, thank you very much.
But.
How the hell am I supposed to keep a straight face when I'm trying to scold her and she mirrors my stance - hands on hips, stern eyebrows, the whole nine yards?
The answer: I'm not. It's cool. It's new. It's fun. And there's no way I'm keepin' a straight face. At least not yet.
My girl, who will be turning six in three months, is finally starting to play some of the games we've been trying for since she was a baby. I think I'll just soak it all up and enjoy every moment, thank you very much.
Labels:
autism,
development,
mimicking,
one mom's journey,
the princess
Monday, January 7, 2013
Age Appropriate
If you're anything like me, those two words together make you cringe, grind your teeth a little, and - perhaps - start to twitch around your right eye. Not that I would know anything about that.
As moms, we all have those pet peeves we can't seem to get over. While they may seem trivial to some outsiders, they are very real and very big to those of us who take issue with them. "Age appropriate" is one of mine. You know, those seemingly harmless little numbers on every toy on the market...the ones that guide the consumer by telling them what age group said toy should be appropriate for on a developmental scale.
I vote we do away with these damned things altogether. Who's with me?
This Christmas, The Princess received a gift card to Toys 'R' Us and some cash from a couple of her great aunties and uncles. A couple of months before Christmas, The Hubbs' iPad crapped out, so our girl had been without her touch-screen educational apps for a while by that point.
Thinking we were doing something good, we threw in about $30 of our own money along with the gift card and cash, and we purchased a LeapFrog LeapPad2 from our local Toys 'R' Us. The age range on the package was 3-9 years. The Princess is going to turn 6 in April.
Well. You can see where this is going, can't you?
The LeapFrog LeapPad2 is lightyears ahead of my girl's abilities. Forget the fact that you have to purchase games and apps separately...I'll just focus on the developmental challenges.
On-off switch? Fine.
Login screen where the child has to choose his or her picture and name from a field of at least 5 choices, even if he or she is the only user? Discouraging.
The fact that the Internet cannot be accessed on the machine itself? Perfect. Exactly what I wanted.
Level of verbal instructions given for each and every game/app the thing came with? Far too advanced.
General process for getting into desirable locations and getting things done? Way too complicated.
Thankfully, our local Toys 'R' Us agreed to let us return the tablet for a cash refund and $25 store credit that same day. I was feeling about "this big" by that time. You know how it goes. The fact that they were willing to work with us made it a little better.
Once I got over myself, we made another trip to the same store a couple of days later. This trip was miles better than the one before. The Princess found two toys she absolutely loves. The fact that they each have an age range of 9-36 months does not bother me in the slightest. In fact, I believe I've learned a little lesson here.
I'm done with age range labels. Who the hell are you, you pretentious, colorful cardboard box, to tell me what's appropriate for my kid. She smiles, it's all good. And you can shove those age ranges where the smiley-face yellow cartoon sun don't shine.
As moms, we all have those pet peeves we can't seem to get over. While they may seem trivial to some outsiders, they are very real and very big to those of us who take issue with them. "Age appropriate" is one of mine. You know, those seemingly harmless little numbers on every toy on the market...the ones that guide the consumer by telling them what age group said toy should be appropriate for on a developmental scale.
I vote we do away with these damned things altogether. Who's with me?
This Christmas, The Princess received a gift card to Toys 'R' Us and some cash from a couple of her great aunties and uncles. A couple of months before Christmas, The Hubbs' iPad crapped out, so our girl had been without her touch-screen educational apps for a while by that point.
Thinking we were doing something good, we threw in about $30 of our own money along with the gift card and cash, and we purchased a LeapFrog LeapPad2 from our local Toys 'R' Us. The age range on the package was 3-9 years. The Princess is going to turn 6 in April.
Well. You can see where this is going, can't you?
The LeapFrog LeapPad2 is lightyears ahead of my girl's abilities. Forget the fact that you have to purchase games and apps separately...I'll just focus on the developmental challenges.
On-off switch? Fine.
Login screen where the child has to choose his or her picture and name from a field of at least 5 choices, even if he or she is the only user? Discouraging.
The fact that the Internet cannot be accessed on the machine itself? Perfect. Exactly what I wanted.
Level of verbal instructions given for each and every game/app the thing came with? Far too advanced.
General process for getting into desirable locations and getting things done? Way too complicated.
Thankfully, our local Toys 'R' Us agreed to let us return the tablet for a cash refund and $25 store credit that same day. I was feeling about "this big" by that time. You know how it goes. The fact that they were willing to work with us made it a little better.
Once I got over myself, we made another trip to the same store a couple of days later. This trip was miles better than the one before. The Princess found two toys she absolutely loves. The fact that they each have an age range of 9-36 months does not bother me in the slightest. In fact, I believe I've learned a little lesson here.
I'm done with age range labels. Who the hell are you, you pretentious, colorful cardboard box, to tell me what's appropriate for my kid. She smiles, it's all good. And you can shove those age ranges where the smiley-face yellow cartoon sun don't shine.
Labels:
age,
appropriate,
autism,
christmas,
development,
leapfrog,
leappad,
leappad2,
range,
the princess,
toys 'r' us
Monday, December 31, 2012
2012: Looking Back
Looking back over the last year, I can hardly believe the blessings in my life. The Princess's accomplishments alone absolutely amaze me.
Each year, I make a special photo book of all of the things that have happened with our girl, which we give to our families as Christmas gifts. The books follow her progress and growth throughout the year, and there's always a recap at the end, written from her perspective. As I sit here and look back at 2012, marveling at all we've done, nothing seems more appropriate to share with you than this year's book recap:
I am so unbelievably proud of my girl, and I feel so incredibly fortunate to have such a fantastic support system. Since the going got tough around here a few years ago, so many of you have stepped up and really proven to me how wonderful human beings can be. I've also found out how selfish and insensitive people can be, but y'all more than make up for that. I didn't need those other folks, anyway.
One of the things that people said left and right around the time of The Princess's diagnosis was that God never gives us any more than we can handle. I wrote this off as a canned response parroted by well-meaning people who love us and don't know what else to say. Now, more than three years after her diagnosis, The Princess shows me every day that this is true. I can't imagine what my life would be like today without her and her autism. I've grown in ways I never knew were possible, and I am very proud to stand before you as the person I am today.
I feel truly blessed, and I am looking forward to this coming new year with a glimmer in my eye and hope in my heart.
Each year, I make a special photo book of all of the things that have happened with our girl, which we give to our families as Christmas gifts. The books follow her progress and growth throughout the year, and there's always a recap at the end, written from her perspective. As I sit here and look back at 2012, marveling at all we've done, nothing seems more appropriate to share with you than this year's book recap:
This was a really big year for me. Momma and Da are very proud of the things I've accomplished. Some of these things are:
Potty training...I haven't worn a Pull-Up (except at night) in months.
Mimicking...this is the first step toward language, something doctors and other professionals have been watching and hoping for since I was really, really young. I now mimic many actions, and one of the major things I've learned is how to wave bye-bye.
Following directions...this is a biggie. One really good example is that I can now walk on the trails at the state park without holding Momma or Da's hand. With a lot of practice, I've learned to follow simple verbal directions when we are out and about.
Swimming...this is the best part of this whole year, as far as I'm concerned. This summer, I spent so much time in the water. Momma and Da worked with me every single day, and by August I could swim from one parent to the other when they stood ten to fifteen feet apart in water that was over my head.
And now comes the sappy. Nana, grab your tissues. You know how you get.
If you're reading this, it's because you're very special to me. I may not speak English on my own yet, but Momma feels confident in telling you that I love you very much. You accept me for who I am, and I don't think I could ever ask for any more than that.
I am so unbelievably proud of my girl, and I feel so incredibly fortunate to have such a fantastic support system. Since the going got tough around here a few years ago, so many of you have stepped up and really proven to me how wonderful human beings can be. I've also found out how selfish and insensitive people can be, but y'all more than make up for that. I didn't need those other folks, anyway.
One of the things that people said left and right around the time of The Princess's diagnosis was that God never gives us any more than we can handle. I wrote this off as a canned response parroted by well-meaning people who love us and don't know what else to say. Now, more than three years after her diagnosis, The Princess shows me every day that this is true. I can't imagine what my life would be like today without her and her autism. I've grown in ways I never knew were possible, and I am very proud to stand before you as the person I am today.
I feel truly blessed, and I am looking forward to this coming new year with a glimmer in my eye and hope in my heart.
Labels:
2012,
autism,
development,
new year,
progress,
recap,
the princess
Monday, December 24, 2012
A Better Christmas Gift
After a week away on business, Nana and Grampy picked me up from the airport on Saturday afternoon. The Hubbs and The Princess were waiting for us back at their house, and I couldn't get there fast enough.
I was out of that car like a shot, careening up the stairs into the great room and singing out my girl's name. She was stimming on some blocks in the middle of the room, right next to her ten-month-old cousin, E.
At the sound of my voice, she stopped what she was doing.
Turned to look at me.
Smiled.
Said, "Momma."
Ran across the room and into my arms.
I honestly can't think of a better Christmas gift.
I was out of that car like a shot, careening up the stairs into the great room and singing out my girl's name. She was stimming on some blocks in the middle of the room, right next to her ten-month-old cousin, E.
At the sound of my voice, she stopped what she was doing.
Turned to look at me.
Smiled.
Said, "Momma."
Ran across the room and into my arms.
I honestly can't think of a better Christmas gift.
Labels:
autism,
christmas,
gift,
home,
one mom's journey,
the hubbs,
the princess,
travel
Monday, December 17, 2012
Pity
"And what about The Princess? Is she totally excited for Santa Claus to come? What does she want this year?"
...asked everyone I've ever known. I know it's not meant to affect me the way it does - I know this - but my reaction is not a logical one.
I get all prickly every time I am asked one of these questions, or any of the hundreds of variations on them. Another favorite: "Does she just love to talk to you on the phone when you're out of town? I bet she gabs your ear off..." or some other such seemingly harmless smalltalk.
We'll address these one at a time. Here, my dear readers, are the answers to what seem - at least lately - to be the most commonly asked questions about my sweet little Princess.
No, she is not totally excited for Santa Claus to come. The fact of the matter is that I don't even know if she has any idea who he is. Or if she's retained any of the mythology, can she even wrap her little head around the concept? These are things I may never know, and I am okay with this.
I have no worldly idea what she wants for Christmas this year. She does not ask me for things. She does not flip through toy catalogs like other children her age. She does not play Internet games or while away the hours with YouTube or Apple apps. She is perfectly happy playing with the toys she has owned since she was a baby. There are a few notable exceptions that have been allowed into the club as late entries, but the vast majority of her preferred playthings are plastered with age range labels that have long been left in our dust. She is happy. I am happy. Please do not concern yourself with whatever the "next big thing" may be for little girls of a certain age. No one in my house knows or cares about them. Yes, I am asking for practical things for her for Christmas. No, it is not sad. End of story.
No, she does not just love to talk to me on the phone when I'm out of town. She doesn't really seem to understand the concept. More and more as she gets older, it seems as though she's recognizing the voices that come out of phones, but she has no interest in holding the phone at all.
No, she does not gab my ear off. She doesn't speak.
And stop it with the pitying looks when I answer you honestly. You asked. I'm not going to lie. We are content - couldn't be happier, actually - with our lives. My girl is not an unfortunate victim of some huge, horrible diagnosis.
She is my girl.
And I love her.
If you don't really want to know what's going on with me and my family, do us both a favor by refraining from asking the questions altogether.
Don't you dare make me feel anything but blessed by what I have.
I wouldn't trade a second of this life for anything. And if you can't understand that, I should be the one pitying you.
...asked everyone I've ever known. I know it's not meant to affect me the way it does - I know this - but my reaction is not a logical one.
I get all prickly every time I am asked one of these questions, or any of the hundreds of variations on them. Another favorite: "Does she just love to talk to you on the phone when you're out of town? I bet she gabs your ear off..." or some other such seemingly harmless smalltalk.
We'll address these one at a time. Here, my dear readers, are the answers to what seem - at least lately - to be the most commonly asked questions about my sweet little Princess.
No, she is not totally excited for Santa Claus to come. The fact of the matter is that I don't even know if she has any idea who he is. Or if she's retained any of the mythology, can she even wrap her little head around the concept? These are things I may never know, and I am okay with this.
I have no worldly idea what she wants for Christmas this year. She does not ask me for things. She does not flip through toy catalogs like other children her age. She does not play Internet games or while away the hours with YouTube or Apple apps. She is perfectly happy playing with the toys she has owned since she was a baby. There are a few notable exceptions that have been allowed into the club as late entries, but the vast majority of her preferred playthings are plastered with age range labels that have long been left in our dust. She is happy. I am happy. Please do not concern yourself with whatever the "next big thing" may be for little girls of a certain age. No one in my house knows or cares about them. Yes, I am asking for practical things for her for Christmas. No, it is not sad. End of story.
No, she does not just love to talk to me on the phone when I'm out of town. She doesn't really seem to understand the concept. More and more as she gets older, it seems as though she's recognizing the voices that come out of phones, but she has no interest in holding the phone at all.
No, she does not gab my ear off. She doesn't speak.
And stop it with the pitying looks when I answer you honestly. You asked. I'm not going to lie. We are content - couldn't be happier, actually - with our lives. My girl is not an unfortunate victim of some huge, horrible diagnosis.
She is my girl.
And I love her.
If you don't really want to know what's going on with me and my family, do us both a favor by refraining from asking the questions altogether.
Don't you dare make me feel anything but blessed by what I have.
I wouldn't trade a second of this life for anything. And if you can't understand that, I should be the one pitying you.
Labels:
answers,
autism,
christmas,
insensitive,
one mom's journey,
pity,
the princess
Monday, December 10, 2012
Butterscotch
The Princess's beloved Uncle D dropped by for a visit this weekend. It's been a while since our girl has seen him, and she had a great time listening to him play the piano and showing him all of the new things she can do since they last hung out.
Mid-afternoon, The Princess headed over to The Grumps' house so Momma, Da and Uncle D could go to the Christmas With Friends party over at Auntie T's place. She played and bossed her grumparents around. I played and bossed the boys around.
Good times.
On the way home, the three of us ended up at Jewel. In a late-night display of sheer brilliance, Uncle D purchased a gigantic - and I mean this guy is HUGE, y'all - teddy bear. We proceeded to strap the bear into the back seat of the car for the ride home, where he was respectfully placed in his rightful spot.
Butterscotch - that's his name, by the way - patiently waited.
A few hours after Uncle D headed back home, so did The Princess. Completely unassuming, she walked into the house and sat in her Winnie the Pooh armchair in the living room, digging into her fruit snacks with a vengeance.
As soon as she had finished, The Hubbs and I asked her to come meet someone new in her room.
The very moment she laid eyes on him, she couldn't help but grin. If I ever doubted love at first sight, this totally seals the deal for me.
You should see her dragging him around the house.
Mid-afternoon, The Princess headed over to The Grumps' house so Momma, Da and Uncle D could go to the Christmas With Friends party over at Auntie T's place. She played and bossed her grumparents around. I played and bossed the boys around.
Good times.
On the way home, the three of us ended up at Jewel. In a late-night display of sheer brilliance, Uncle D purchased a gigantic - and I mean this guy is HUGE, y'all - teddy bear. We proceeded to strap the bear into the back seat of the car for the ride home, where he was respectfully placed in his rightful spot.
Butterscotch - that's his name, by the way - patiently waited.
A few hours after Uncle D headed back home, so did The Princess. Completely unassuming, she walked into the house and sat in her Winnie the Pooh armchair in the living room, digging into her fruit snacks with a vengeance.
As soon as she had finished, The Hubbs and I asked her to come meet someone new in her room.
The very moment she laid eyes on him, she couldn't help but grin. If I ever doubted love at first sight, this totally seals the deal for me.
You should see her dragging him around the house.
Monday, December 3, 2012
At the Dinner Table
You don't talk about that at the dinner table. We don't act like that at the dinner table. No dogs at the dinner table. You will sit at the dinner table until you've finished your meal, young lady.
How many times have you heard this in your life? Be honest.
Do you want to know what we've never really done at our dinner table? Eat dinner.
It's always been easier to grab a plate and sit in the living room, chowing in front of the TV, so we never really even thought about it.
A couple of months ago, we had our fall parent-teacher conference. The Fabulous Mrs. G. and her staff told us all about the great stuff that's been happening at school, and The Hubbs and I marveled at how much The Princess is able to do for herself there.
Home has always been a free zone, a place where she doesn't need to worry about tons of structure. We've always felt she gets enough of that from the other adults in her life, and we've wanted to provide that sanctuary for her...a special place where she can just be her without worrying about a thing.
Lately, though, it has become apparent that a little structure can go a long way. We've started making small changes that have had big results, and it's really exciting to witness.
The most recent is the fact that all three of us sit down at eat together at the dinner table every night. The Hubbs and I have found that this simple change has helped us to slow down for a short time each evening, while providing the small amount of structure that seems to help our girl find her center.
She comes into the kitchen, sits in her chair at the end of the table, eats her favorite things first, drinks all of her milk from a big girl glass and proceeds to make a fuss over eating whatever unacceptable crap I've shoved in front of her face.
Just like I did when I was five.
How many times have you heard this in your life? Be honest.
Do you want to know what we've never really done at our dinner table? Eat dinner.
It's always been easier to grab a plate and sit in the living room, chowing in front of the TV, so we never really even thought about it.
A couple of months ago, we had our fall parent-teacher conference. The Fabulous Mrs. G. and her staff told us all about the great stuff that's been happening at school, and The Hubbs and I marveled at how much The Princess is able to do for herself there.
Home has always been a free zone, a place where she doesn't need to worry about tons of structure. We've always felt she gets enough of that from the other adults in her life, and we've wanted to provide that sanctuary for her...a special place where she can just be her without worrying about a thing.
Lately, though, it has become apparent that a little structure can go a long way. We've started making small changes that have had big results, and it's really exciting to witness.
The most recent is the fact that all three of us sit down at eat together at the dinner table every night. The Hubbs and I have found that this simple change has helped us to slow down for a short time each evening, while providing the small amount of structure that seems to help our girl find her center.
She comes into the kitchen, sits in her chair at the end of the table, eats her favorite things first, drinks all of her milk from a big girl glass and proceeds to make a fuss over eating whatever unacceptable crap I've shoved in front of her face.
Just like I did when I was five.
Labels:
autism,
dinner,
family,
one mom's journey,
progress,
table,
the hubbs,
the princess
Monday, November 26, 2012
Mean
I use words like y'all and soda. My family eats dinner together, even if we are a bit unconventional about it. We live in a house with a yard and two dogs. The vast majority of our free time is spent outside, whether it be in the lake or hiking in a state park. I believe you should treat others the way you would like to be treated and that a little kindness goes a long way. I listen to country music. A LOT of country music.
I feel as though these are things you must know about me and my family before reading on. Now that we've got that all straightened out, I have a little story to share with y'all.
*
Driving along in our little compact car the other day, The Princess reached forward and handed The Hubbs her bowl. Again. She'd been eating non-stop since we left the house, and we were in real danger of running out of snacks. We were not quite half-way through our errands.
"Sorry, honey. All done. You can have some more in a little while," said The Hubbs.
If you don't already know this, The Princess is autistic and non-verbal. She loves music and possesses an unbelievable ability to pick up melodies and retain them, taking them out and playing with them when she sees fit, sometimes days, weeks, or even months after hearing them. We've noticed lately that certain songs tend to come up in certain situations, almost like the melodies are her way of saying yes, no, I'm mad, or what have you.
You see, that paragraph in italics is kind of important. If you don't know that about my girl, you won't understand why her reaction is so damned funny to me.
Without skipping a beat, The Princess started singing a new melody we hadn't heard from her before: the chorus of Taylor Swift's "Mean." The lyrics go like this: Someday, I'll be livin' in a big old city, and all you're ever gonna be is mean...yeah...someday, I'll be big enough so you can't hit me, and all you're ever gonna be is mean. Why you gotta be so mean?
Get it? I mean, how flippin' cool is that? I just about had to pull off the road when we realized what she was singing.
Not clicking yet? I'll spell it out for ya: The Hubbs told The Princess no, and she essentially responded with, "Daddy, why you gotta be so mean?"
Thank goodness I wasn't drinkin' a soda at the time, y'all, or I'd have sprayed it all over the inside of my windshield. And then, as my AC would say, I'd have to give it a good warshin'.
I feel as though these are things you must know about me and my family before reading on. Now that we've got that all straightened out, I have a little story to share with y'all.
*
Driving along in our little compact car the other day, The Princess reached forward and handed The Hubbs her bowl. Again. She'd been eating non-stop since we left the house, and we were in real danger of running out of snacks. We were not quite half-way through our errands.
"Sorry, honey. All done. You can have some more in a little while," said The Hubbs.
If you don't already know this, The Princess is autistic and non-verbal. She loves music and possesses an unbelievable ability to pick up melodies and retain them, taking them out and playing with them when she sees fit, sometimes days, weeks, or even months after hearing them. We've noticed lately that certain songs tend to come up in certain situations, almost like the melodies are her way of saying yes, no, I'm mad, or what have you.
You see, that paragraph in italics is kind of important. If you don't know that about my girl, you won't understand why her reaction is so damned funny to me.
Without skipping a beat, The Princess started singing a new melody we hadn't heard from her before: the chorus of Taylor Swift's "Mean." The lyrics go like this: Someday, I'll be livin' in a big old city, and all you're ever gonna be is mean...yeah...someday, I'll be big enough so you can't hit me, and all you're ever gonna be is mean. Why you gotta be so mean?
Get it? I mean, how flippin' cool is that? I just about had to pull off the road when we realized what she was singing.
Not clicking yet? I'll spell it out for ya: The Hubbs told The Princess no, and she essentially responded with, "Daddy, why you gotta be so mean?"
Thank goodness I wasn't drinkin' a soda at the time, y'all, or I'd have sprayed it all over the inside of my windshield. And then, as my AC would say, I'd have to give it a good warshin'.
Labels:
autism,
mean,
melody,
music,
non-verbal,
one mom's journey,
taylor swift,
the hubbs,
the princess
Monday, November 19, 2012
This Boy I Kind of Like
Well, I guess the cat's out of the bag. There's this boy I kind of like. Kind of have for a while. Maybe about eight and a half years. Not that I'm counting.
You guessed it: this boy I kind of like is none other than The Hubbs.
This weekend, we celebrated my love's (ahem-cough-cough)st birthday. We spent Saturday doing all the things he wanted to do, and we had the fam over yesterday to celebrate on the actual day.
Eight and a half years, and I still feel like a schoolgirl every time I see him.
Yes, dear. Even if you are older than dirt.
I love you, mister. Thanks for being you.
Happy birthday!
Vroom
You guessed it: this boy I kind of like is none other than The Hubbs.
This weekend, we celebrated my love's (ahem-cough-cough)st birthday. We spent Saturday doing all the things he wanted to do, and we had the fam over yesterday to celebrate on the actual day.
Eight and a half years, and I still feel like a schoolgirl every time I see him.
Yes, dear. Even if you are older than dirt.
I love you, mister. Thanks for being you.
Happy birthday!
Vroom
Labels:
birthday,
family,
one mom's journey,
the hubbs
Monday, November 12, 2012
Head and Shoulders, Knees and Toes
It's singalong time, y'all. You all know this one...don't try to deny it.
Ready?
1...2...3...sing it with me!
Head...
..and shoulders...
...knees...
...and toes!
Pay no attention to the state of her room. We've had more important things to worry about lately, like the fact that The Princess is now mimicking all sorts of fabulous stuff.
At five-and-a-half years old, my girl has reached a major milestone: one of the first steps toward speech. I am so proud I could burst.
And I'm having a blast seeing exactly what she'll copy. There's a lot, and it's totally entertaining. I'm gonna go out on a limb here and assume we should probably start watching what we say. There's a possibility we may have another speaker in our midst within the foreseeable future.
Ready?
1...2...3...sing it with me!
Head...
..and shoulders...
...knees...
...and toes!
Pay no attention to the state of her room. We've had more important things to worry about lately, like the fact that The Princess is now mimicking all sorts of fabulous stuff.
At five-and-a-half years old, my girl has reached a major milestone: one of the first steps toward speech. I am so proud I could burst.
And I'm having a blast seeing exactly what she'll copy. There's a lot, and it's totally entertaining. I'm gonna go out on a limb here and assume we should probably start watching what we say. There's a possibility we may have another speaker in our midst within the foreseeable future.
Labels:
autism,
development,
head,
knees,
milestone,
mimicking,
one mom's journey,
progress,
shoulders,
the princess,
toes
Monday, November 5, 2012
Halloween Miracle
Tradition in our little yellow house dictates very specific Halloween activities, including trick-or-treating at The Grumps and attending a fabulous party with their neighbors. Unfortunately, The Grumps were out of town for Halloween this year, so we were on our own.
On the big day, we dressed The Princess in her punk rocker costume - complete with pink hair and a studded dog collar as her belt - and sent her off to school. When she got home, The Hubbs took her to a local state park to blow off some steam while I finished up my work day.
And then we freshened up her look and headed outside. We made a face, and she mimicked it. Right into the camera.
Proud doesn't even begin to describe this moment. She's looking into the camera. She's mimicking a face we've made at her seconds before snapping the picture. She's doing both things AT THE SAME TIME, as the result of an implied request.
I never would have thought it was possible. Just another example of how much and how often my girl knocks my socks off.
On the big day, we dressed The Princess in her punk rocker costume - complete with pink hair and a studded dog collar as her belt - and sent her off to school. When she got home, The Hubbs took her to a local state park to blow off some steam while I finished up my work day.
And then we freshened up her look and headed outside. We made a face, and she mimicked it. Right into the camera.
Proud doesn't even begin to describe this moment. She's looking into the camera. She's mimicking a face we've made at her seconds before snapping the picture. She's doing both things AT THE SAME TIME, as the result of an implied request.
I never would have thought it was possible. Just another example of how much and how often my girl knocks my socks off.
Labels:
autism,
development,
eye contact,
halloween,
mimicking,
one mom's journey,
progress,
punk,
rocker,
the hubbs,
the princess
Monday, October 29, 2012
Sick Of Hearing About Pee?
Well, have I got a treat for you! I'm out of town at the moment for a work retreat, so I'll make this short and sweet.
I talked to The Hubbs yesterday morning. Apparently, when he walked into The Princess's room to check on her while she was playing on Saturday evening, he found a giant poop in her pink froggy potty.
And, it seems he forgot to put her in her overnight Pull-Ups on Friday and Saturday. And she was dry. Both nights.
That is all.
I talked to The Hubbs yesterday morning. Apparently, when he walked into The Princess's room to check on her while she was playing on Saturday evening, he found a giant poop in her pink froggy potty.
And, it seems he forgot to put her in her overnight Pull-Ups on Friday and Saturday. And she was dry. Both nights.
That is all.
Labels:
autism,
one mom's journey,
potty training,
progress,
the hubbs,
the princess
Monday, October 22, 2012
Waving
The Hubbs: "Hi, Princess. Hiiiiii."
The Princess:
At five and a half years old, she's finally beginning to understand the concept of waving. She still seems a bit confused by it, but it's slowly working its way into her vocabulary of actions.
The Princess:
At five and a half years old, she's finally beginning to understand the concept of waving. She still seems a bit confused by it, but it's slowly working its way into her vocabulary of actions.
Labels:
autism,
development,
one mom's journey,
special needs,
the hubbs,
the princess,
waving
Monday, October 15, 2012
The Best Decision I Ever Made
In my life, I've made my fair share of mistakes. Everybody has. We all know this about ourselves and those close to us. But I love my mistakes; I hold them close to my heart, because they paved the way for the best decision I ever made.
If I hadn't had that four-year brain fart starting in high school (who shall remain nameless), I never would have needed karaoke to show me my way home.
If I hadn't spent seventeen years with my so-called best friend (who shall remain nameless), who stabbed me in the back countless times, I never would have developed a thick skin. A thick skin that has been my saving grace these last few years as I've dealt with these people - we all know one or two of them - who have no worldly idea how to treat another human being. "Nameless" and these other people have also taught me how to stand my ground when I know I'm right, and for that, I thank them.
If I hadn't had such a love-hate relationship with a few certain people over the years, I'd never be able to fully appreciate true, unbiased, unconditional, full-wattage love when I saw it.
If none of these things had ever happened the way they did, I have no idea where I'd have been on March 27, 2003. I may never have met the love of my life.
Seven years ago, I married my best friend. Today, as I look back, I can't help but thank God for all of the little mistakes along my path, the ones that brought me to him and him to me.
He never wanted to get married before we met. I, apparently, have such a profound effect on men (ahem) that I decisively changed his mind over the course of six months...without ever having any idea that this is what I was doing.
You see, I had given up on the idea that I needed a man to complete me. I had had enough of serious dating, and I was out to have a little fun and be myself.
And that's when it happened.
Somewhere between him adamantly not wanting to get married and me just wanting to have fun, we found our soul mates in each other.
Every day since we met has been another fairy tale.
Happy seventh wedding anniversary, Swatta. I love you, and I can say with absolute certainty that you are the best decision I ever made.
If I hadn't had that four-year brain fart starting in high school (who shall remain nameless), I never would have needed karaoke to show me my way home.
If I hadn't spent seventeen years with my so-called best friend (who shall remain nameless), who stabbed me in the back countless times, I never would have developed a thick skin. A thick skin that has been my saving grace these last few years as I've dealt with these people - we all know one or two of them - who have no worldly idea how to treat another human being. "Nameless" and these other people have also taught me how to stand my ground when I know I'm right, and for that, I thank them.
If I hadn't had such a love-hate relationship with a few certain people over the years, I'd never be able to fully appreciate true, unbiased, unconditional, full-wattage love when I saw it.
If none of these things had ever happened the way they did, I have no idea where I'd have been on March 27, 2003. I may never have met the love of my life.
Seven years ago, I married my best friend. Today, as I look back, I can't help but thank God for all of the little mistakes along my path, the ones that brought me to him and him to me.
He never wanted to get married before we met. I, apparently, have such a profound effect on men (ahem) that I decisively changed his mind over the course of six months...without ever having any idea that this is what I was doing.
You see, I had given up on the idea that I needed a man to complete me. I had had enough of serious dating, and I was out to have a little fun and be myself.
And that's when it happened.
Somewhere between him adamantly not wanting to get married and me just wanting to have fun, we found our soul mates in each other.
Every day since we met has been another fairy tale.
Happy seventh wedding anniversary, Swatta. I love you, and I can say with absolute certainty that you are the best decision I ever made.
Labels:
anniversary,
love,
mistakes,
one mom's journey,
the hubbs
Monday, October 8, 2012
Loved to Hate It
Every week since she turned three, The Princess has brought home a potty chart in her backpack. This evil little scrap of paper loves to mock all of our efforts, and I love to hate it.
I suppose I should really say, "I loved to hate it."
Why, you may ask? See for yourself.
That's right. A perfect record. It only took two and a half years at school, and - damn it - it was worth every single second of the wait.
I suppose I should really say, "I loved to hate it."
Why, you may ask? See for yourself.
That's right. A perfect record. It only took two and a half years at school, and - damn it - it was worth every single second of the wait.
Monday, October 1, 2012
Potty Training, Picture Day and the Death of a Dishwasher
Buckle up, folks...this post is gonna be a rambler. ;)
Since we talked last week, a lot has happened. We've continued our daily trips to the local state parks, and The Princess continues to love it.
Don't believe me? Here's your proof:
Go ahead...just try to tell me that's not a happy kid.
She is still a major fan of the stroller rides, and I'm so unbelievably proud of her. Are you sitting down? No? Grab a seat. I'll wait.
Not only is our girl rockin' the big girl panties every day, but she's decided to take things up a notch. She now stops what she is doing, gets up, runs to her potty, goes, pulls up her drawers, removes the pee bucket from the pink froggy, and attempts to empty it into the toilet herself. Without being prompted. I mean, like, all by herself.
I know. I almost plotzed the first time it happened. And the second. And the third. I think I'm finally starting to get used to it.
Just shy of five and a half years of wearing diapers every single day...and it was so totally worth the wait. Sure, it took years of grueling potty training, but when this girl gets something, she gets it. There are no words for the pride I feel.
***
Thursday was Fall Picture Day at school. I have a hard time saying that without a snarky little whine creeping into my voice. Autism + Picture Day = Hell On Wheels for everyone involved. At least, that's been my experience over the last couple of years.
Unbelievably, this year seems to have been different. I'll have to reserve my final judgment for after we hear back from her teachers, but it doesn't seem to have thrown her at all.
Five minutes before our alarm was set to go off on Thursday morning, The Princess woke up and started singing. As we walked into our room, I noticed that her hair looked amazing. Yes, my girl, the one whose bedhead is epic and can last for days, woke up with not one single hair out of place.
We cruised through our morning routine with no hiccups, The Princess cooperating every step of the way. She even chose her own outfit for her school picture.
After putting her on the bus with her backpack and an in-case-of-emergency change of pants, The Hubbs and I returned to work.
No phone calls. No emails. No panicked correspondence of any kind. For Picture Day, it was eerily silent.
And then her bus arrived at the end of our driveway. She greeted us with a smile and a song, still wearing the outfit she had chosen that morning and giving no indication that anything remotely out of the ordinary had happened.
We were warned in advance that this year's pictures would be taken in the gym, and that this can often be unbearable for at least some of the kids in the autism program. No kidding. We live with one. Big, cavernous space + lots of antsy kids + waiting in line and being expected to do specific things = the mother of all meltdowns just waiting to happen.
But there was nothing. She was happy. No notes from teachers, aides, therapists. No worried calls from school nurses.
Nothing at all.
I can't wait to see this picture, y'all.
***
And in totally non-Princess-related news, we've been fighting with our dishwasher for some time now. We received it as a hand-me-down about six years ago. and I couldn't have been more thankful. There was no way we could have afforded one at the time, and, hey...it was free.
Over the last five or so years, I've torn that machine apart more times than I can count. My momma didn't raise me to be a needy little girly-girl, so I dive head-first into repairs in my own home the way she always has with hers. Probably a month and a half to two months ago, the dishwasher started acting up again, and I just didn't feel like I had time to check it out. Fast-forward to September, and The Hubbs and I were just totally O-V-E-R the idea of hand-washing everything. All meals in our little yellow house are made from scratch, and we do a lot of crock-potting and baking.
Something needed to be done.
I ripped apart the dishwasher yet again, pulled diagnostic codes from its onboard computer, flipped it on its back, removed and tested all of the electrical components and came to a decision. The capacitor and pressure switch alone would cost over $100 (plus shipping), and I didn't even know if that would fix the problem or not. My first attempt - replacing the heating element - didn't do it, so my usually sunny outlook was gaining more than a little cloud cover. With so many things testing in the bad-to-dead range, I was afraid there was a short somewhere in the machine.
Never one to give up, I called every store in the area that carries dishwashers. I found one for $224 - brand new - and borrowed Momma's truck. A few hours later, our new dishwasher was running the first load of dishes, and it does a great job. In fact, I'm listening to it now.
And, can I just say that I'm feelin' pretty good about myself here? I'm no helpless girly-girl, for sure, but this is the first time I've done this type of project from start to finish completely on my own. Between the mechanical, electrical and plumbing aspects of the job, this has inflated my ego just a smidge.
***
All in all, I'd say it was a good week in our little yellow house. But I can seriously do without any additional appliance weirdness for a while. Here's hopin' the next week is on the quiet side, and we can have lots of uninterrupted family time.
Since we talked last week, a lot has happened. We've continued our daily trips to the local state parks, and The Princess continues to love it.
Don't believe me? Here's your proof:
Go ahead...just try to tell me that's not a happy kid.
She is still a major fan of the stroller rides, and I'm so unbelievably proud of her. Are you sitting down? No? Grab a seat. I'll wait.
Not only is our girl rockin' the big girl panties every day, but she's decided to take things up a notch. She now stops what she is doing, gets up, runs to her potty, goes, pulls up her drawers, removes the pee bucket from the pink froggy, and attempts to empty it into the toilet herself. Without being prompted. I mean, like, all by herself.
I know. I almost plotzed the first time it happened. And the second. And the third. I think I'm finally starting to get used to it.
Just shy of five and a half years of wearing diapers every single day...and it was so totally worth the wait. Sure, it took years of grueling potty training, but when this girl gets something, she gets it. There are no words for the pride I feel.
***
Thursday was Fall Picture Day at school. I have a hard time saying that without a snarky little whine creeping into my voice. Autism + Picture Day = Hell On Wheels for everyone involved. At least, that's been my experience over the last couple of years.
Unbelievably, this year seems to have been different. I'll have to reserve my final judgment for after we hear back from her teachers, but it doesn't seem to have thrown her at all.
Five minutes before our alarm was set to go off on Thursday morning, The Princess woke up and started singing. As we walked into our room, I noticed that her hair looked amazing. Yes, my girl, the one whose bedhead is epic and can last for days, woke up with not one single hair out of place.
We cruised through our morning routine with no hiccups, The Princess cooperating every step of the way. She even chose her own outfit for her school picture.
After putting her on the bus with her backpack and an in-case-of-emergency change of pants, The Hubbs and I returned to work.
No phone calls. No emails. No panicked correspondence of any kind. For Picture Day, it was eerily silent.
And then her bus arrived at the end of our driveway. She greeted us with a smile and a song, still wearing the outfit she had chosen that morning and giving no indication that anything remotely out of the ordinary had happened.
We were warned in advance that this year's pictures would be taken in the gym, and that this can often be unbearable for at least some of the kids in the autism program. No kidding. We live with one. Big, cavernous space + lots of antsy kids + waiting in line and being expected to do specific things = the mother of all meltdowns just waiting to happen.
But there was nothing. She was happy. No notes from teachers, aides, therapists. No worried calls from school nurses.
Nothing at all.
I can't wait to see this picture, y'all.
***
And in totally non-Princess-related news, we've been fighting with our dishwasher for some time now. We received it as a hand-me-down about six years ago. and I couldn't have been more thankful. There was no way we could have afforded one at the time, and, hey...it was free.
Over the last five or so years, I've torn that machine apart more times than I can count. My momma didn't raise me to be a needy little girly-girl, so I dive head-first into repairs in my own home the way she always has with hers. Probably a month and a half to two months ago, the dishwasher started acting up again, and I just didn't feel like I had time to check it out. Fast-forward to September, and The Hubbs and I were just totally O-V-E-R the idea of hand-washing everything. All meals in our little yellow house are made from scratch, and we do a lot of crock-potting and baking.
Something needed to be done.
I ripped apart the dishwasher yet again, pulled diagnostic codes from its onboard computer, flipped it on its back, removed and tested all of the electrical components and came to a decision. The capacitor and pressure switch alone would cost over $100 (plus shipping), and I didn't even know if that would fix the problem or not. My first attempt - replacing the heating element - didn't do it, so my usually sunny outlook was gaining more than a little cloud cover. With so many things testing in the bad-to-dead range, I was afraid there was a short somewhere in the machine.
Never one to give up, I called every store in the area that carries dishwashers. I found one for $224 - brand new - and borrowed Momma's truck. A few hours later, our new dishwasher was running the first load of dishes, and it does a great job. In fact, I'm listening to it now.
And, can I just say that I'm feelin' pretty good about myself here? I'm no helpless girly-girl, for sure, but this is the first time I've done this type of project from start to finish completely on my own. Between the mechanical, electrical and plumbing aspects of the job, this has inflated my ego just a smidge.
***
All in all, I'd say it was a good week in our little yellow house. But I can seriously do without any additional appliance weirdness for a while. Here's hopin' the next week is on the quiet side, and we can have lots of uninterrupted family time.
Monday, September 24, 2012
The Princess and the Pee: Part Two
Whatever you do, don't read this out loud. She'll hear you, and the spell could be broken. I hesitate to even type it.
Remember when I told you about how long The Princess has been using diapers of some kind?
And then when I got all excited about our recent potty training efforts and the leaps and bounds our girl has made?
For the last solid week, The Princess has been prancing around her world sans training pants. Did you hear that? We're only using Pull-Ups at bedtime now.
She's using the potty consistently, and there's a glint in her eye that says she gets it. She's proud.
She even holds it when we're out for a walk at the state park. For two hours.
On Saturday, she had her first pit toilet experience (You know, the ones that are like glorified outhouses? The ones that blow cold air up your butt and look like a 41-lb skinny minny of a thing could fall right in and never make it out? Mm-hmm. One of those.).
She'd been riding in her stroller over some really rough terrain for a couple of miles. We're talking straight up and down, bumpy stuff...yeah, that's right, we took her all-terrain stroller on the most difficult part of the trails. And it was awesome. I can still feel it in my shoulders.
We came up to a potty house, and The Hubbs and I could tell it was going to be pit toilets by the look of it. The Princess, however, hadn't experienced these things before. As I ran with her to the potty, she was getting visibly more excited by the moment. Her bottom was dry, and she was getting antsy.
I opened the door, she took one look around and tried to bolt. Fortunately, I caught her and was able to explain the situation. She very cautiously walked around the toilet on all sides, casting suspicious glances into its fragrant depths before looking up at me with one last plea.
"I can tell you have to go potty, Princess," I told her. "It's either this or have an accident in your pants, because it's going to be a while yet before we get back to the big building where we started."
She thought about this for only a moment before dropping her pants and hoisting her little bottom up onto the tall pot. The look on her face as the cold air hit her bottom was priceless.
It took a few seconds, but she went. And went. And went.
Grinning from ear to ear, she hopped off the pot and pulled up her panties and pants. She then proceeded to do laps around the toilet in an effort to figure out how to flush. I did my best to explain that this kind of toilet doesn't have a flusher, and she listened intently.
Finally, she decided that closing the lid would have to do. Leaving the little outhouse, we skipped back to her daddy, hand in hand, to complete our hike.
If my pride isn't evident through my words, maybe hers will be in this picture.
I am so unbelievably proud of this little girl, and I am once again in awe of how much the little things impact our lives every single day.
After nearly five and a half years of diapers and three to four years of potty training, we've arrived. I can't imagine any other victory that could be this sweet.
Remember when I told you about how long The Princess has been using diapers of some kind?
And then when I got all excited about our recent potty training efforts and the leaps and bounds our girl has made?
For the last solid week, The Princess has been prancing around her world sans training pants. Did you hear that? We're only using Pull-Ups at bedtime now.
She's using the potty consistently, and there's a glint in her eye that says she gets it. She's proud.
She even holds it when we're out for a walk at the state park. For two hours.
On Saturday, she had her first pit toilet experience (You know, the ones that are like glorified outhouses? The ones that blow cold air up your butt and look like a 41-lb skinny minny of a thing could fall right in and never make it out? Mm-hmm. One of those.).
She'd been riding in her stroller over some really rough terrain for a couple of miles. We're talking straight up and down, bumpy stuff...yeah, that's right, we took her all-terrain stroller on the most difficult part of the trails. And it was awesome. I can still feel it in my shoulders.
We came up to a potty house, and The Hubbs and I could tell it was going to be pit toilets by the look of it. The Princess, however, hadn't experienced these things before. As I ran with her to the potty, she was getting visibly more excited by the moment. Her bottom was dry, and she was getting antsy.
I opened the door, she took one look around and tried to bolt. Fortunately, I caught her and was able to explain the situation. She very cautiously walked around the toilet on all sides, casting suspicious glances into its fragrant depths before looking up at me with one last plea.
"I can tell you have to go potty, Princess," I told her. "It's either this or have an accident in your pants, because it's going to be a while yet before we get back to the big building where we started."
She thought about this for only a moment before dropping her pants and hoisting her little bottom up onto the tall pot. The look on her face as the cold air hit her bottom was priceless.
It took a few seconds, but she went. And went. And went.
Grinning from ear to ear, she hopped off the pot and pulled up her panties and pants. She then proceeded to do laps around the toilet in an effort to figure out how to flush. I did my best to explain that this kind of toilet doesn't have a flusher, and she listened intently.
Finally, she decided that closing the lid would have to do. Leaving the little outhouse, we skipped back to her daddy, hand in hand, to complete our hike.
If my pride isn't evident through my words, maybe hers will be in this picture.
I am so unbelievably proud of this little girl, and I am once again in awe of how much the little things impact our lives every single day.
After nearly five and a half years of diapers and three to four years of potty training, we've arrived. I can't imagine any other victory that could be this sweet.
Labels:
autism,
development,
diaper,
one mom's journey,
potty training,
progress,
proud,
state park,
stroller,
the hubbs,
the princess
Monday, September 17, 2012
Photoblog: State Park
Okay, so you may have figured out by now - smarties that you are - that I'm only posting once a week to this blog. Between work, mommahood and the launch of Sam the Dragon, I think this is probably the most realistic goal I can set for myself at the moment. This means I'll be posting no more than once per day between all of my various blogs.
***
Saturday, September 8, we awoke to the first chilly morning we've had since the beginning of the summer. It was 53 degrees outside our little yellow house, and the sky was a crisp, clear blue: perfect weather for walking around our local state park.
The Princess is now five years old, and she still absolutely adores riding in a stroller. Earlier this year, we scrimped and saved until we could afford a three-wheeled all-terrain jogging stroller with a higher weight limit to accommodate her. She is in lub with this thing. We take family walks every day, and she seems to get the same calming effect from the stroller that she used to get from the horses at hippotherapy. Something about the movement helps her find her center, and that, my friends, is a beautiful thing. Priceless, really.
Along our walk at the state park, we spent a good deal of time with a pair of sandhill cranes, and we even met a little froggy friend on a lily pad by the lake.
After our long walk, we drove through the rest of the park and came across a wonderful, blessedly deserted playground, where we swung, climbed, slid and hung from monkey bars. It was a sensory and texture wonderland and the perfect topper to a spectacular morning with my loves.
***
Saturday, September 8, we awoke to the first chilly morning we've had since the beginning of the summer. It was 53 degrees outside our little yellow house, and the sky was a crisp, clear blue: perfect weather for walking around our local state park.
The Princess is now five years old, and she still absolutely adores riding in a stroller. Earlier this year, we scrimped and saved until we could afford a three-wheeled all-terrain jogging stroller with a higher weight limit to accommodate her. She is in lub with this thing. We take family walks every day, and she seems to get the same calming effect from the stroller that she used to get from the horses at hippotherapy. Something about the movement helps her find her center, and that, my friends, is a beautiful thing. Priceless, really.
Along our walk at the state park, we spent a good deal of time with a pair of sandhill cranes, and we even met a little froggy friend on a lily pad by the lake.
After our long walk, we drove through the rest of the park and came across a wonderful, blessedly deserted playground, where we swung, climbed, slid and hung from monkey bars. It was a sensory and texture wonderland and the perfect topper to a spectacular morning with my loves.
Labels:
autism,
one mom's journey,
parenting,
perfect,
sensory input,
state park,
stroller,
the hubbs,
the princess
Monday, September 10, 2012
Photoblog: The Great Lake
As you all know, our regularly scheduled summer activities have come to a grinding halt. Our little private lake has been closed due to a bloom of blue-green algae that can be harmful to humans and pets, and it's not looking as though we'll be able to get back in before the fall cool-off commences.
Our Labor Day weekend was interesting, due to the fact that this all happened on the Friday beforehand. But you already know all about that.
The Tuesday after Labor Day, Grumma made a suggestion. While The Princess was at school, Grumma called me to ask what I thought of an after-work field trip (I work from home, so these are totally possible) to our nearest Great Lake. She and Grumpa had ventured over to one of our favorite beaches there the day before, and she told me the water was perfect.
Well, I had to admit that this sounded like a fabulous idea, and it would be another first for The Princess: she'd never been to the Great Lake before. The Hubbs and I packed up all we'd need while our girl was still at school, and shortly after she got home, she and I took off to Grumma's house. Da's entitled to a little peace and quiet every once in a while, ya know. :)
I had my reservations about switching cars and then driving nearly another hour before arriving at our destination. Fortunately, we had thought ahead and not breathed a word of our plans to The Princess, so she wasn't all worked up at the prospect of swimming, only to be let down by a long car ride to get there. All I told her ahead of time was that we were going to Grumma's house, and that she was going to take us someplace special.
I should really hit my knees here and thank the good Lord that my girl is as adaptable as she is. I realize how much of a challenge this can be for many non-verbal individuals, not to mention those on the spectrum; sometimes, the smallest variation on a routine can cause utter chaos...even with my girl, but on a much smaller scale than many. Every day, this little girl blows me away with what she is willing, ready, and able to take on. Oh, to be this fearless and free.
It turns out I needn't have worried. After pulling into our parking spot, she still hadn't glimpsed the water. I fished her ruffle-bottom bathing suit out of the laundry basket I'd brought along with all of our stuff, and she began to flap and strip at the same time (not an easy feat).
Once she saw that suit, she knew something was up. Changed and gooped to the max with sunscreen, we headed down to the water's edge.
I don't think either Grumma or I could have imagined a better outcome. It was a complete and utter success: a smash hit.
And I think there's just a slight possibility that we may be doing this again...and again...and again...
Our Labor Day weekend was interesting, due to the fact that this all happened on the Friday beforehand. But you already know all about that.
The Tuesday after Labor Day, Grumma made a suggestion. While The Princess was at school, Grumma called me to ask what I thought of an after-work field trip (I work from home, so these are totally possible) to our nearest Great Lake. She and Grumpa had ventured over to one of our favorite beaches there the day before, and she told me the water was perfect.
Well, I had to admit that this sounded like a fabulous idea, and it would be another first for The Princess: she'd never been to the Great Lake before. The Hubbs and I packed up all we'd need while our girl was still at school, and shortly after she got home, she and I took off to Grumma's house. Da's entitled to a little peace and quiet every once in a while, ya know. :)
I had my reservations about switching cars and then driving nearly another hour before arriving at our destination. Fortunately, we had thought ahead and not breathed a word of our plans to The Princess, so she wasn't all worked up at the prospect of swimming, only to be let down by a long car ride to get there. All I told her ahead of time was that we were going to Grumma's house, and that she was going to take us someplace special.
I should really hit my knees here and thank the good Lord that my girl is as adaptable as she is. I realize how much of a challenge this can be for many non-verbal individuals, not to mention those on the spectrum; sometimes, the smallest variation on a routine can cause utter chaos...even with my girl, but on a much smaller scale than many. Every day, this little girl blows me away with what she is willing, ready, and able to take on. Oh, to be this fearless and free.
It turns out I needn't have worried. After pulling into our parking spot, she still hadn't glimpsed the water. I fished her ruffle-bottom bathing suit out of the laundry basket I'd brought along with all of our stuff, and she began to flap and strip at the same time (not an easy feat).
Once she saw that suit, she knew something was up. Changed and gooped to the max with sunscreen, we headed down to the water's edge.
I don't think either Grumma or I could have imagined a better outcome. It was a complete and utter success: a smash hit.
And I think there's just a slight possibility that we may be doing this again...and again...and again...
Labels:
autism,
field trip,
labor day,
one mom's journey,
parenting,
special needs,
stimming,
summer,
swimming,
the princess
Tuesday, September 4, 2012
Another Victory
With the exception of a handful of days, we've been swimming every single day this summer. Living a couple of blocks off the lake has turned out to be our saving grace this year. The Princess couldn't be happier than when she's in the water, and The Hubbs and I have come to depend upon it as well.
Our plans for Labor Day weekend included one thing: swimming. We wanted nothing more than to see how many hours we could spend at the lake over these last four days.
And then...
On Friday afternoon, we were at our neighborhood beach for about ten minutes or so before a guy came by on his boat telling us that he had received an email saying that the lake had been closed due to a bloom of blue-green algae that can be harmful to people.
We got out of the lake and went home, showering thoroughly to avoid any adverse effects. Checking the all-knowing Internet, our fears were confirmed: the lake was closed until further notice.
This is how we had planned to spend the long weekend:
Instead, we had to come up with alternatives. There were quite a few hits and quite a few misses along the way, but one alternative afternoon activity just kills me.
On Sunday, our girl was restless. She saw me outside watering my flowers and began to fuss. I called inside to The Hubbs, and we decided it would be a good idea to let her play in the sprinkler. She came out in her favorite ruffle-bottom bathing suit and had an absolute blast.
Our front yard is fenced in, so it's pretty great for our purposes. We let The Princess have her fun where we could keep an eye on her from the living room. Every couple of minutes, we'd see our girl grinning and running through the sprinkler, happily stimmy-fliddling little droplets of water.
And then...
The Hubbs peeked out the front window and exclaimed, "What the...?"
Well, naturally, I had to get up to see what was going on. And, boy, am I glad I did.
Stepping out onto our front stoop, I took in the view. The ruffly bottom of our girl's swim suit was lying discarded near the sprinkler, and she was streaking across the front yard and cackling at the top of her lungs.
Once we wrangled the streaker, we noticed something else was awry.
Mm-hmm.
The only question at that point was: where is it?
I took her inside, plopped her on the pink froggy potty to finish her business, cleaned up her little bottom, and got her set up with a new pair of panties and a Pull-Up. Leaving her with The Hubbs, I took a strip of TP out into the front yard to commence my search.
There it was, not far from where we caught her running, smack in the middle of the front yard. As I bent down to pick it up, this whole situation struck me as the funniest thing I'd ever heard.
I mean, here we are, trying so very hard to potty-train our girl. Each day, we celebrate tiny little victories like thinking to pull our pants down when we have to go.
Really, what was so wrong with this? In the middle of the front yard, in full view of the road and all of our neighbors, our little girl dropped trou and pooped. Because she had to.
It's all in our perception, y'all. This could have been a hugely negative experience for some people, but me...I prefer to see it as another victory.
Oh, and P.S. Her doggies are very proud of her. They've decided she's finally worthy of the title Bulldog In Training.
Our plans for Labor Day weekend included one thing: swimming. We wanted nothing more than to see how many hours we could spend at the lake over these last four days.
And then...
On Friday afternoon, we were at our neighborhood beach for about ten minutes or so before a guy came by on his boat telling us that he had received an email saying that the lake had been closed due to a bloom of blue-green algae that can be harmful to people.
We got out of the lake and went home, showering thoroughly to avoid any adverse effects. Checking the all-knowing Internet, our fears were confirmed: the lake was closed until further notice.
This is how we had planned to spend the long weekend:
Instead, we had to come up with alternatives. There were quite a few hits and quite a few misses along the way, but one alternative afternoon activity just kills me.
On Sunday, our girl was restless. She saw me outside watering my flowers and began to fuss. I called inside to The Hubbs, and we decided it would be a good idea to let her play in the sprinkler. She came out in her favorite ruffle-bottom bathing suit and had an absolute blast.
Our front yard is fenced in, so it's pretty great for our purposes. We let The Princess have her fun where we could keep an eye on her from the living room. Every couple of minutes, we'd see our girl grinning and running through the sprinkler, happily stimmy-fliddling little droplets of water.
And then...
The Hubbs peeked out the front window and exclaimed, "What the...?"
Well, naturally, I had to get up to see what was going on. And, boy, am I glad I did.
Stepping out onto our front stoop, I took in the view. The ruffly bottom of our girl's swim suit was lying discarded near the sprinkler, and she was streaking across the front yard and cackling at the top of her lungs.
Once we wrangled the streaker, we noticed something else was awry.
Mm-hmm.
The only question at that point was: where is it?
I took her inside, plopped her on the pink froggy potty to finish her business, cleaned up her little bottom, and got her set up with a new pair of panties and a Pull-Up. Leaving her with The Hubbs, I took a strip of TP out into the front yard to commence my search.
There it was, not far from where we caught her running, smack in the middle of the front yard. As I bent down to pick it up, this whole situation struck me as the funniest thing I'd ever heard.
I mean, here we are, trying so very hard to potty-train our girl. Each day, we celebrate tiny little victories like thinking to pull our pants down when we have to go.
Really, what was so wrong with this? In the middle of the front yard, in full view of the road and all of our neighbors, our little girl dropped trou and pooped. Because she had to.
It's all in our perception, y'all. This could have been a hugely negative experience for some people, but me...I prefer to see it as another victory.
Oh, and P.S. Her doggies are very proud of her. They've decided she's finally worthy of the title Bulldog In Training.
Labels:
autism,
development,
diaper,
labor day,
one mom's journey,
poop,
potty training,
progress,
special needs,
the hubbs,
the princess
Tuesday, August 28, 2012
The Princess and the Pee
Once upon a time, there was a little girl named The Princess. She was super-sweet and unbelievably adorable, and she was diagnosed with autism at a very young age.
By the age of five, she was nonverbal and still wearing Pull-Ups. Her momma and da knew it would be hard, but they were beginning to burn out on this whole potty training business after starting it when The Princess was about two years old.
And then one day, something clicked. Momma put a pair of panties on under The Princess's Pull-Up, and she finally started to get it. She still had accidents, but not nearly as many as before, and she seemed to be getting better and better as time went on.
This made her momma and da very happy.
Kindergarten started - The Princess's third year in school, if you can believe it - and she kept improving. The Fabulous Mrs. G. didn't send home any wet pants or notes regarding misbehavior in the first two weeks. In fact, the only note that she did send said that The Princess had taken herself to the bathroom twice during the school day, without any modeling, prompting or coaching from any of the staff members in the room.
Things were looking up.
Then, twice in one week, The Princess pooped in her little pink froggy potty.
And everyone lived happily ever after. The end.
By the age of five, she was nonverbal and still wearing Pull-Ups. Her momma and da knew it would be hard, but they were beginning to burn out on this whole potty training business after starting it when The Princess was about two years old.
And then one day, something clicked. Momma put a pair of panties on under The Princess's Pull-Up, and she finally started to get it. She still had accidents, but not nearly as many as before, and she seemed to be getting better and better as time went on.
This made her momma and da very happy.
Kindergarten started - The Princess's third year in school, if you can believe it - and she kept improving. The Fabulous Mrs. G. didn't send home any wet pants or notes regarding misbehavior in the first two weeks. In fact, the only note that she did send said that The Princess had taken herself to the bathroom twice during the school day, without any modeling, prompting or coaching from any of the staff members in the room.
Things were looking up.
Then, twice in one week, The Princess pooped in her little pink froggy potty.
And everyone lived happily ever after. The end.
Labels:
autism,
one mom's journey,
parenting,
potty training,
progress,
proud,
special needs,
the princess
Sunday, August 26, 2012
Cherish
"A friend is someone who knows us, but loves us anyway."
~Jerome Cummings
As I grow older, making my way toward the dreaded label of "adult" - which I'm sure I'll hit by the time I'm about 72 or so - I am amazed by the way things never really turn out how I think they will. My perspective has shifted ever so slightly so damned many times in the last twenty years that I can hardly believe that silly little tween was me.
And so, at the ripe-old age of 31, I am here to share with you a small but very important portion of my infinite wisdom. Pay attention, kids, 'cause here it comes.
Throughout my life, I've had many different sets of friends. At times, I collected them like trophies to trot out and put on display for all to see. When the going got rough, though, I always found out who was in it for the long haul.
There are plenty of people out there who are willing to call someone their friend. Hell, these days it seems as though the majority of new friendships are started online - how sad is that? - and people don't even have to hold actual conversations. Texting, facebook and twitter have replaced hanging out, talking on the phone until the wee hours of the night and riding your bike to your pal's house. You can "like" something a person says or slam them without ever looking them in the face.
But when you get down to brass tacks, I'd be willing to bet you can count your true friends on one hand. It's not a competition here, folks, and I know there will be exceptions, but I know it to be true in my own life and from observing those around me.
How many of your facebook friends would drop what they were doing and drive 30+ miles to bring you your spare set of car keys when you've locked yourself out of your car at a shopping mall in the dead of winter?
How many of your twitter followers would babysit your dogs while you deal with a family emergency?
How many people that you text with would stick out their neck for you?
How many of these "friends" would even pick up the phone if they saw your number on the Caller ID?
See? Now I've got you thinking. The gears are turning...I can hear them. You're really not sure about most of those so-called friends, now, are you?
Do yourself a favor. Go grab a pencil and a piece of paper - not a smart phone or a tablet...I want you to write this out for real. I'll wait.
Now, write the names of your friends - not counting family - who you could count on to do any of the four things I mentioned above, no questions asked.
Look at the list. Study it. These are your real friends. Slip this piece of paper into your pocket or your wallet, and revisit it every day.
These are the people on whom you should be expending your energy. These are the people who are going to be there for you when shit gets hard. You need to do the same for them, or they may decide that somewhere down the line, you're no longer worth the time and effort...and these are not the people you want to lose due to neglect.
Nurture these relationships. Cherish them. Because when we're all old, grey and pruny, we want to be able to sit in a rocking chair on a porch, sipping sweet tea with our best friends, proudly looking back on our lives. When I'm 72 (and, presumably, grown up), I want to sit there with T and reminisce about all the dumb shit we've done together...and all the dumb shit we're gonna do together in the next 41 years.
That's right, girlie. This whole, big, rambling post is just another roundabout way to tell you that I love you.
Happy birthday, T. You're my bestie, and I plan on pestering you for a damn long time yet.
Labels:
birthday,
friend,
growing up,
lucky,
one mom's journey
Thursday, August 23, 2012
My Friend
I have this friend, arguably my best friend in the entire world...definitely in the top-most tier of buds, pals, what-have-you. I've known him all my life, and he's always been there for me no matter what.
1987: Sam, the family dog, passed away. It was hard on everyone. My friend showed up the next day with a little black puff of fur that won the hearts of the entire family. Curly became our collective best bud, and he kept us company for eighteen wonderful years after that.
1988: I was seven years old when my best kiddo-pal down the block moved to Utah. My friend understood and helped me to convince Momma Lady that I really could take care of my very own kitten. That kitten and Curly became inseparable, and Kiki - I couldn't say kitty-kitty - became my personal protector.
1989: My friend showed up one evening with a pink Schwinn Fair Lady bicycle for my birthday. It was perfect: vintage, a dark dusty rose color with a brand-new white banana seat. I rode that thing for years, even blazing around the BMX track and completing my now-infamous no-footer over the plateau. The boys never looked at me the same after that.
I could go on and on for days, weeks, years, telling you about some of the things he did for me while I was a kid. Seeing as how none of us have that kind of time, I'll jump ahead to my adulthood.
2005: My friend made me giggle by being his usual goofy self during my wedding rehearsal, and that was all I could think about as he and I prepared to walk down the aisle the next day to meet my future.
2007: My friend became a grandfather, and he has devoted his life to adoring that little girl ever since.
My friend, as you may have guessed, is my father, better known in these parts as Pop. Now, I know it may seem odd for a grown woman to count her daddy among her very best friends in the world, but I say screw convention. This dude is the life of the party, and I will be a daddy's girl until the day I die.
Happy birthday, Pop. I love you, man.
1987: Sam, the family dog, passed away. It was hard on everyone. My friend showed up the next day with a little black puff of fur that won the hearts of the entire family. Curly became our collective best bud, and he kept us company for eighteen wonderful years after that.
1988: I was seven years old when my best kiddo-pal down the block moved to Utah. My friend understood and helped me to convince Momma Lady that I really could take care of my very own kitten. That kitten and Curly became inseparable, and Kiki - I couldn't say kitty-kitty - became my personal protector.
1989: My friend showed up one evening with a pink Schwinn Fair Lady bicycle for my birthday. It was perfect: vintage, a dark dusty rose color with a brand-new white banana seat. I rode that thing for years, even blazing around the BMX track and completing my now-infamous no-footer over the plateau. The boys never looked at me the same after that.
I could go on and on for days, weeks, years, telling you about some of the things he did for me while I was a kid. Seeing as how none of us have that kind of time, I'll jump ahead to my adulthood.
2005: My friend made me giggle by being his usual goofy self during my wedding rehearsal, and that was all I could think about as he and I prepared to walk down the aisle the next day to meet my future.
2007: My friend became a grandfather, and he has devoted his life to adoring that little girl ever since.
My friend, as you may have guessed, is my father, better known in these parts as Pop. Now, I know it may seem odd for a grown woman to count her daddy among her very best friends in the world, but I say screw convention. This dude is the life of the party, and I will be a daddy's girl until the day I die.
Happy birthday, Pop. I love you, man.
Labels:
birthday,
family,
friend,
one mom's journey,
Pop
Tuesday, August 21, 2012
Unexplained
The Princess calmly came home from school yesterday, as she does most days. She walked in the front door, dropped her pants and shuffled over to the potty. She had her snack, gave out a round of hugs and retired to her room.
Five or ten minutes later, out of nowhere, she began to cry. Loudly, and with gusto. The Hubbs peeked his head into her room to see what was wrong, and she began to cry louder. She didn't seem hurt, and nothing was obviously out of place in her room.
Grabbing her daddy's hand, she directed him toward the kitchen and flung his hand toward the gate. He obliged her request, opening the gate for her to go through. The moment the gate was open, her face turned tomato-red, and her hands flew up to cover her eyes while gigantic alligator tears spilled out of her eyes.
She didn't seem to want more food, and she wasn't interested in a drink.
Very purposefully, my girl directed her daddy to the screen door, which he opened for her. She then proceeded to yank on the handle of her car door, still crying but getting her point across nonetheless. At The Princess's request, her daddy helped her into her car seat and fastened her seat belt. A couple of minutes later, he brought her snack out in case she was interested.
Our girl then proceeded to happily eat her trail mix while strapped into her car seat, alone in the dim garage.
And here is where I start to have trouble putting things into words. I know that I will never be able to fully understand every aspect of her autism, but this one truly baffles me. I'm just glad we were able to accommodate her request.
Five or ten minutes later, out of nowhere, she began to cry. Loudly, and with gusto. The Hubbs peeked his head into her room to see what was wrong, and she began to cry louder. She didn't seem hurt, and nothing was obviously out of place in her room.
Grabbing her daddy's hand, she directed him toward the kitchen and flung his hand toward the gate. He obliged her request, opening the gate for her to go through. The moment the gate was open, her face turned tomato-red, and her hands flew up to cover her eyes while gigantic alligator tears spilled out of her eyes.
She didn't seem to want more food, and she wasn't interested in a drink.
Very purposefully, my girl directed her daddy to the screen door, which he opened for her. She then proceeded to yank on the handle of her car door, still crying but getting her point across nonetheless. At The Princess's request, her daddy helped her into her car seat and fastened her seat belt. A couple of minutes later, he brought her snack out in case she was interested.
Our girl then proceeded to happily eat her trail mix while strapped into her car seat, alone in the dim garage.
And here is where I start to have trouble putting things into words. I know that I will never be able to fully understand every aspect of her autism, but this one truly baffles me. I'm just glad we were able to accommodate her request.
Labels:
autism,
one mom's journey,
the hubbs,
the princess
Tuesday, August 14, 2012
It Gets Easier
Two and a half years ago, I put my three-year-old girl on a bus for the first time. The first step came up past her armpits. This was not one of my better days as a momma. I remember crying as the bus pulled away and wandering around the house with her blankie the whole time she was gone.
It seemed far too early. I couldn't wrap my head around the fact that my toddler was going to be away from home for hours every day. I didn't know what to do.
It's gotten easier every day since then. The Princess absolutely adores The Fabulous Mrs. G., and she does a happy dance every time the bus arrives at the end of our driveway.
By now, she's an old pro. The bus is no longer scary, and there are no nerves whatsoever (for any of us).
Even on the first day of kindergarten.
As I sent my girl off to school this morning, I was struck by how easy it has become. We've been blessed with an amazing staff of folks working with our girl through the special education district, and I wouldn't trade any one of them for all the tea in China.
I was also struck by the idea that many of my friends and family will be sending their little ones off on buses for the first time very soon. I'm here to tell you that it gets easier.
And I'm here if you want to talk. I've been there, y'all. Forcing myself to stay home instead of following the bus all the way to school, blubbering on the couch that first morning, ecstatic to get a phone call from Mrs. G. telling me that The Princess was okay, I went through every emotion in the book. I get it. I do. And I'm thinking of you and your little ones as you embark on this journey.
It seemed far too early. I couldn't wrap my head around the fact that my toddler was going to be away from home for hours every day. I didn't know what to do.
It's gotten easier every day since then. The Princess absolutely adores The Fabulous Mrs. G., and she does a happy dance every time the bus arrives at the end of our driveway.
By now, she's an old pro. The bus is no longer scary, and there are no nerves whatsoever (for any of us).
Even on the first day of kindergarten.
As I sent my girl off to school this morning, I was struck by how easy it has become. We've been blessed with an amazing staff of folks working with our girl through the special education district, and I wouldn't trade any one of them for all the tea in China.
I was also struck by the idea that many of my friends and family will be sending their little ones off on buses for the first time very soon. I'm here to tell you that it gets easier.
And I'm here if you want to talk. I've been there, y'all. Forcing myself to stay home instead of following the bus all the way to school, blubbering on the couch that first morning, ecstatic to get a phone call from Mrs. G. telling me that The Princess was okay, I went through every emotion in the book. I get it. I do. And I'm thinking of you and your little ones as you embark on this journey.
Tuesday, August 7, 2012
Who's Counting?
5 years, 3 months, 27 days: this is the current running count of how long we've been using diapers of some sort in this house.
1: this is the number of children in this house.
10: this is about the average number of diaper-type contraptions she's gone through on a daily basis for the last 5 years, 3 months, 27 days.
Some days, it gets so frustrating I could just scream. There are those days when it seems like every time I turn around, she's wet. No matter how many times she sits on her pink froggy potty (with this cute little face that mocks me relentlessly), she just can't seem to make it happen.
And then there are other days. It's like a switch; we're going to have a good day or a bad day. There is no in between. Typically, the stellar days are followed immediately by the rip-your-hair-out fests that leave us all exhausted by dinner time.
We have a budget for Pull-Ups, which we routinely break, but somehow I just can't bring myself to raise that number.
44: the number of generic potty training pants in a package that should last us two weeks in between paychecks.
13: the number of generic potty training pants remaining after less than one full week.
These were the numbers running through my head as The Hubbs and I discussed where the extra "dipe money" was going to come from last week (for those of you who are interested, we raided our gas fund).
Something has got to give. The Fabulous Mrs. G insisted at the end of last school year that our girl had no need for Pull-Ups at school anymore. We didn't understand how. Home has always been different somehow. Home is the land of regression and slipping effortlessly into old habits.
We've tried everything at one point or another. Everything.
Somehow, it seems like we consistently try things too early, and if we have the presence of mind to revisit them at a later date, we're nearly always pleasantly surprised.
And that's the phase I'm in right now: pleasantly surprised.
4: the number of days our girl has been wearing panties (under her generic potty pants)
3: the average number of soiled panties/dipes per day since we started this time
3: the number of dry nights in a row, including last night
I'm aware of the fact that these things ebb and flow (pardon the pun), and that I just need to roll with it. I'm aware of the fact that The Princess is not any of the other kids I know who were potty-trained at lightning speed during any part of almost four years we've been working on this skill in our little yellow house. I'm aware of the possibility that typing this all out loud could very well invite a hair-pulling bad day back in where things have been going so well.
I'm aware of all these things, but I just had to share this with you. Why? Because I really think you'll understand. Because, even though things are going well, sometimes it's easy to dwell on the negative.
Because, without sitting down and putting this into words, I wouldn't be able to see the biggest number clearly.
5 years, 3 months, 27 days: this is the running count of how long I've been a momma, the running count of time since my world changed forever. This is the running count of my new life, of time elapsed at the most important and fulfilling job I'll ever have.
But who's counting?
1: this is the number of children in this house.
10: this is about the average number of diaper-type contraptions she's gone through on a daily basis for the last 5 years, 3 months, 27 days.
Some days, it gets so frustrating I could just scream. There are those days when it seems like every time I turn around, she's wet. No matter how many times she sits on her pink froggy potty (with this cute little face that mocks me relentlessly), she just can't seem to make it happen.
And then there are other days. It's like a switch; we're going to have a good day or a bad day. There is no in between. Typically, the stellar days are followed immediately by the rip-your-hair-out fests that leave us all exhausted by dinner time.
We have a budget for Pull-Ups, which we routinely break, but somehow I just can't bring myself to raise that number.
44: the number of generic potty training pants in a package that should last us two weeks in between paychecks.
13: the number of generic potty training pants remaining after less than one full week.
These were the numbers running through my head as The Hubbs and I discussed where the extra "dipe money" was going to come from last week (for those of you who are interested, we raided our gas fund).
Something has got to give. The Fabulous Mrs. G insisted at the end of last school year that our girl had no need for Pull-Ups at school anymore. We didn't understand how. Home has always been different somehow. Home is the land of regression and slipping effortlessly into old habits.
We've tried everything at one point or another. Everything.
Somehow, it seems like we consistently try things too early, and if we have the presence of mind to revisit them at a later date, we're nearly always pleasantly surprised.
And that's the phase I'm in right now: pleasantly surprised.
4: the number of days our girl has been wearing panties (under her generic potty pants)
3: the average number of soiled panties/dipes per day since we started this time
3: the number of dry nights in a row, including last night
I'm aware of the fact that these things ebb and flow (pardon the pun), and that I just need to roll with it. I'm aware of the fact that The Princess is not any of the other kids I know who were potty-trained at lightning speed during any part of almost four years we've been working on this skill in our little yellow house. I'm aware of the possibility that typing this all out loud could very well invite a hair-pulling bad day back in where things have been going so well.
I'm aware of all these things, but I just had to share this with you. Why? Because I really think you'll understand. Because, even though things are going well, sometimes it's easy to dwell on the negative.
Because, without sitting down and putting this into words, I wouldn't be able to see the biggest number clearly.
5 years, 3 months, 27 days: this is the running count of how long I've been a momma, the running count of time since my world changed forever. This is the running count of my new life, of time elapsed at the most important and fulfilling job I'll ever have.
But who's counting?
Labels:
autism,
development,
diaper,
one mom's journey,
parenting,
potty training,
progress,
proud,
special needs,
the princess
Tuesday, July 17, 2012
Livin' On A Prayer
One day, I'll update y'all on the bigger goings-on around here...I swear! For now, my time is limited, and I know it'll even out eventually. So, the thing is, at least I'm posting, right? Right.
So, here I sit this morning, minding my own business and working at my home office. I've got iTunes going as always, and all of a sudden, something catches my attention. "Livin' On A Prayer" by Bon Jovi has just ended, but I still hear the melody.
I pause my music and turn to my left. The Princess is singing the song that was just playing. With gusto.
I've been telling people for a while that our girl is a music lover. Most of her waking hours are spent singing to herself, us, the dogs, anyone who will listen, really...and we all love it. But the thing is, this is a song that we don't always listen to. It's not a repetition thing. She heard the melody and liked it so much, she kept it going after the song was over.
I am in awe.
I know I don't say it enough, so here it is in writing: I. Love. My. Life.
Later that same day: According to The Hubbs, our little Princess was belting the song out at the top of her lungs in the library. The melody was so obvious to those around her that there was no question as to what she was getting at. And she's still singing it as I type this note. :)
So, here I sit this morning, minding my own business and working at my home office. I've got iTunes going as always, and all of a sudden, something catches my attention. "Livin' On A Prayer" by Bon Jovi has just ended, but I still hear the melody.
I pause my music and turn to my left. The Princess is singing the song that was just playing. With gusto.
I've been telling people for a while that our girl is a music lover. Most of her waking hours are spent singing to herself, us, the dogs, anyone who will listen, really...and we all love it. But the thing is, this is a song that we don't always listen to. It's not a repetition thing. She heard the melody and liked it so much, she kept it going after the song was over.
I am in awe.
| Random, gratuitous photo of our little rock star |
I know I don't say it enough, so here it is in writing: I. Love. My. Life.
Later that same day: According to The Hubbs, our little Princess was belting the song out at the top of her lungs in the library. The melody was so obvious to those around her that there was no question as to what she was getting at. And she's still singing it as I type this note. :)
Labels:
humming,
music,
one mom's journey,
the princess
Sunday, July 1, 2012
The Lake...
...is what our summer is all about this year. How about you?
It seems that we have the perfect place for The Princess mere blocks away from home. It's a texture wonderland, between the sandy beach, tons of water, and rocks on the bottom. She's taken to launching herself off of us in true daredevil style, and I don't think I've ever had more fun in my life.
Oh, and water wings? We don't need no stinking water wings.
Saturday, June 2, 2012
Show Me
Me: "Show me your nose."
The Princess carefully extends one finger, makes eye contact, smiles, and touches the tip of her nose.
It's taken five years, y'all, and it was worth every second of the wait.
The Princess carefully extends one finger, makes eye contact, smiles, and touches the tip of her nose.
It's taken five years, y'all, and it was worth every second of the wait.
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