You know what kills me? The fact that I don't know what will help The Princess. I know she loves OT, and it has a very positive effect on her. I know she tolerates the others, but I don't see the same response lately as I do with in-clinic OT.
In two months, my daughter will age out of the Early Intervention program in Illinois...and graduate up to Early Childhood Education. This means that the public school system will be responsible for providing the care she needs and, frankly, that scares the shit out of me. The in-home and in-clinic therapists we've come to know and love will no longer be our service providers through the state.
A couple of people have recommended keeping up as much private therapy as we can even after she starts preschool. Sounds good to me, but it's easier said than done...how do I know what to keep? How do I pay for it? Each OT session in the clinic runs about $150, and that's once a week. So let's say there are only 4 Mondays in the month...that's $600 every month. Just where, exactly, is that money going to come from?
And that's just for one therapist. We currently have four.
Oh, and there's a sensory learning program at the new place our in-clinic OT is starting up. She says she believes it will really help The Princess, and I believe her...she has yet to steer me wrong. The downside: this one-month treatment costs $3,000, and there are no guarantees. But if there's a chance it could help her, how can I say no?
Some sort of sign would be really nice right about now. Are you listening, God? I could use some help on this one.
I love you.
ReplyDeleteOk I tried to post this yesterday and it didn't take but anywayssss...register Ms. Chloe with your state's Department of Developmental Disability..... You can get grants, financial assistance, training and respite care.
ReplyDeleteDepending on where you live it may be called the Department of Mental Retardation. H
Jello: 'nuff said. Thank you. Love you too.
ReplyDeleteJenn: thanks for the info. I'll definitely check into it...we'll take all the help we can get!!